MAC Member Organizations
Best Day Ever Skin Cancer Awareness
Best Day Ever Skin Cancer Awareness, Ltd, better known as #shamelesslysunsafe, was started by Licensed Massage Therapist & melanoma patient Amanda Halverstadt McDaniel, BCTMB. Their goal is to spread awareness in any way possible, but to especially focus on client centered professions where skin is viewed. Hairstylists, estheticians, nail techs, tattoo artists, and massage therapists all have an opportunity to recognize the indicators of skin cancers on clients, and should be trained appropriately on how to effectively communicate any concerns. Because any type of diagnostic comment is beyond their scope of practice, these service providers most often shy from learning in depth about skin cancer, or even discussing it with clients.
#Shamelesslysunsafe has already teamed up with a massage therapy school, and developed a physician approved course & protocol that has been approved by the National Certification Board for Therapeutic Massage & Bodywork (NCBTMB). Massage Therapists can take their career specific course and earn approved continuing education hours.
shamelesslysunsafe.com/massage-therapy
Children's Melanoma Prevention Foundation
The Children's Melanoma Prevention Foundation, a non-profit educational foundation, was established in 2003 to deliver a comprehensive sun safety and melanoma awareness program, free of charge, to children and their caregivers. Our goal is to prevent skin cancer, one child at a time!
The Children's Melanoma Prevention Foundation has three specific goals:
The Children's Melanoma Prevention Foundation has three specific goals:
- To increase a child's knowledge about the risks of excessive ultraviolet exposure from both natural and artifical sources.
- To encourage children to practice the 5 SunAWARE action steps.
- To reduce the impact of skin cancer on families and society.
Colette Coyne Melanoma Awareness Campaign
Colette Coyne Melanoma Awareness Campaign (CCMAC) began in 1998 in response to the death of an exceptional thirty-year-old woman named Colette Marie Brigid Coyne. Realizing there was little awareness regarding the danger of skin cancer on Long Island, this foundation was established through the efforts of those touched by her life.
Colette Coyne Memorial Melanoma Foundation dba CCMAC is dedicated to:
http://ccmac.org
Colette Coyne Memorial Melanoma Foundation dba CCMAC is dedicated to:
- Increasing public awareness regarding the dangers and causes of Skin Cancer/Melanoma.
- Early education of our youth, families and the community.
- Changing attitudes, and behaviors regarding unprotected exposure to the Sun’s UV Rays, tanning, and tanning bed use as well as promoting early detection by providing free skin screenings at Long Island Beaches.
- Advocating for Laws and Policies designed to protect individuals and communities from the Sun’s UV Rays, and use of tanning beds.
- Advocating for Increased funding for Education and Research.
http://ccmac.org
Connect Melanoma
Home of the #blackribbonarmy, Connect Melanoma was founded by Patrick Guddal in 2020 as a resource to provide multi-channel melanoma education in the upper Midwest. Inspired by the ambitious work of fellow survivors and his own experience with the effectiveness of in-person engagement, Connect offers melanoma awareness and prevention education to a wide range of audiences in commercial, institutional, and government settings, as well as providing popup sun safety programming at the many outdoor events that take place in the region. In addition, the staff at Connect maintain a continual presence in advocacy as they meet with lawmakers to ask for their support of measures that fund melanoma research and education at both the state and federal levels.
www.connectmelanoma.org
www.connectmelanoma.org
The David Cornfield Melanoma Fund
The David Cornfield Melanoma Fund is devoted to saving lives from melanoma through awareness, prevention and research.
http://dcmf.ca
www.newfamilyrule.com
A Cure in Sight
A Cure In Sight™ is a U.S. registered non-profit who’s mission it is to provide the highest level of patient eduction on Ocular Melanoma using kind and clear content so patients and their families can make informed choices on treatments. ACIS strives to reach the ocular melanoma community and help bridge the gap between patients, physicians, and insurance providers. We act by providing funding for ongoing research, providing financial assistance to patients in need, and by offering patient-centered programs to support the patient, their families, and the ocular melanoma community in general.
acureinsight.org eyebelieveinacure.net
acureinsight.org eyebelieveinacure.net
Defeat Melanoma: Jeff Dulude Melanoma Foundation
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Defeat Melanoma is an initiative founded by the Jeff Dulude Melanoma Foundation, a 501(c)(3) non-profit organization dedicated to promoting education and sponsoring the development of innovative programs focused on increasing awareness regarding the prevention, early detection, and treatment of melanoma – the most deadly form of skin cancer. Our mission is to promote education and sponsor the development of innovative programs dedicated to increasing awareness regarding the prevention, early detection, and treatment of melanoma.
https://defeatmelanoma.org |
Derma Care Access Network
The Derma Care Access Network sponsors educational initiatives and advocacy programs designed to encourage informed policymaking about the benefits of access to approved therapies and appropriate clinical care. These programs provide the foundational capacity for developing a network of engaged advocates who are trained, organized and activated in furtherance of DCAN’s mission.
DCAN promotes better skin health through advocating for public policies that:
- Encourage the advancement of dermatological science and innovation
- Support the education of patients, healthcare providers, and other stakeholders
- Promote the development of improved means of preventing and treating skin disease
- Further access to appropriate prevention and treatment options for all patients
Dermatology Nurses' Association
The Dermatology Nurses’ Association is a professional nursing organization comprised of a diverse group of individuals committed to quality care through sharing knowledge and expertise. The core purpose is to promote excellence in dermatological care.
https://www.dnanurse.org
Foundation for Community Health
Foundation for Community Health provides philanthropic support for the advancement of healthy lives in western Montana. Our Steven Robinson Memorial Endowment was established in 2001 based on a promise to Steven, who lost his life at age 35 to a late-diagnosed melanoma in 2000.
www.fchwmt.org
Helms Hope Foundation
Through innovative outreach and education, the Helms Hope Foundation is committed to raising awareness and enabling early detection of melanoma to completely eliminate melanoma deaths in America. Helms Hope works with professionals in the beauty and wellness industry to integrate skin screenings into the daily lives of Americans.
helmshope.org
helmshope.org
IMPACT Melanoma
IMPACT Melanoma (formerly the Melanoma Foundation of New England) is a national non-profit organization dedicated to working to reduce the incidence of melanoma. Committed to skin cancer prevention and early detection, we provide a variety of award-winning programs which aim to raise awareness and educate the public about skin cancer, as well as support services for those struggling with the disease. IMPACT stands for Improving Melanoma Prevention, through Awareness, Care & Teaching.
www.impactmelanoma.org
The Jack H. Marston II Melanoma Fund
We envision a world where every adult and child is aware of the risks of melanoma and takes preventative measures; where those who suffer from melanoma receive comfort and healing; and ultimately, where every case of melanoma will be completely curable.
jacksfund.org
The Jason Farley All in for a Cure Foundation
Jason Farley All In For A Cure Foundation Inc. is a 501(c)3 non-profit organization that was established in May 2014 in Loving Memory of Jason Farley who passed away at the young age of 30 from Stage IV Metastatic Melanoma.
• We are dedicated to raising awareness to the public about the dangers of tanning bed use and over exposure to the sun.
• We are advocates of legislation supporting safety and restrictions of UV exposure from tanning devices.
• We are committed to raising funds for melanoma research for Mass General Hospital and other organizations with hope of one day finding a cure.
• We also provide financial assistance to individuals in need, that have been affected by melanoma.
http://jasonfarleymelanomafoundation.org
• We are dedicated to raising awareness to the public about the dangers of tanning bed use and over exposure to the sun.
• We are advocates of legislation supporting safety and restrictions of UV exposure from tanning devices.
• We are committed to raising funds for melanoma research for Mass General Hospital and other organizations with hope of one day finding a cure.
• We also provide financial assistance to individuals in need, that have been affected by melanoma.
http://jasonfarleymelanomafoundation.org
Kelly's Dream
Kelly’s Dream is a 501(c)3 non-profit foundation that focuses on easing the financial and emotional strain of cancer, raising melanoma awareness, and spreading the gift of hope.
www.kellysdream.org
Larry's Legacy - Sunflowers of Hope
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Larry’s Legacy was created in memory of a dedicated and beloved businessman, Larry Weathers, Jr., who lost his battle with melanoma in 2012. The 3rd Annual Larry’s Legacy reception will benefit Penn Medicine’s Melanoma Research and Patient Care Fund, which will allow further melanoma research and help other melanoma patients continue their fight.
https://www.facebook.com/larryweawthersjr/ |
March4Meg
The mission of March4Meg is to fight melanoma by increasing awareness, offering educational programs and raising funds for the melanoma program at Advocate Christ Medical Center. In addition, financial resources will be utilized for other related melanoma prevention programs as well as financial support to melanoma patients and their families.
http://www.march4meg.com
Melanoma Know More
Melanoma Know More, a 501(c)3 providing service to the Greater Cincinnati area, strives to reduce the impact of melanoma through awareness, education, support of medical research, and assistance to persons affected by melanoma. Melanoma Know More offers free monthly skin cancer screening clinics, educational programming in schools and provides funding for research.
www.melanomaknowmore.com
Melanoma Network of Canada
The Melanoma Network of Canada supports individuals whose lives have been changed by melanoma and non-melanoma skin cancer. We are advancing the prevention of melanoma through advocacy and education.
https://www.melanomanetwork.ca
Miggy's Gift
Miggy’s Gift is a non-profit organization founded in March, 2018 in loving memory of Stephen D. Chavez, who at the young age of 29 lost his battle to Metastatic Stage 4 Melanoma Cancer. Stephen, who was also known by his friends as “Miggy”, was a fun and loving young man who lived his life passionately and fiercely. He was the middle child with an older sister and younger brother. Stephen graduated with a degree in Video Game Development and Design and his instinct to help others blended with his passion for video games. He organized a video game tournament in Miami called Florida Lan (Flan). Gamers flew from across the country to attend the two-day event. All the money raised was donated to an organization that provides video consoles and games to pediatric hospitals and homeless shelters. Soon after his diagnosis, during his stay in the hospital, it didn’t take long for him to notice how poorly designed the hospital gowns were for patients receiving infusion treatment. In true Stephen fashion, along with his passion to help kids, Stephen started designing a super hero inspired gown for pediatric cancer patients. Unknowingly, he had planted the seed for what would later become his legacy.
Our mission at Miggy’s Gift is to visit pediatric cancer units and deliver gift packages that include a super hero hospital gown, a story book, and a plush stuffed dog wearing a super hero cape. Video consoles and games are also provided for the enjoyment of all the children on the pediatric unit. A scholarship grant has also been established at Miami Dade College Magic (Miami Animation Gaming International Complex.) The applicant must be a full time student in the video game program, have a 3,0 GPA, qualify for financial aid, and write an essay on anti-cheating in video games. The grant has been named the Stephen “Miggy” Chavez scholarship grant. In addition, we educate and bring awareness about the dangers of sun exposure, the importance of regular skin examinations, and the urgency of early detection. We do this by visiting local Boys Scout troops, summer camps, and after school sport programs. We donate and distribute educational materials and sunscreen dispensers and lotion. Through our seminars and skin cancer advocating efforts, we hope to make a difference in our community and fulfill Stephen’s desire of spreading the word about the dangers of Melanoma and all Skin Cancers.
www.miggysgift.org
Our mission at Miggy’s Gift is to visit pediatric cancer units and deliver gift packages that include a super hero hospital gown, a story book, and a plush stuffed dog wearing a super hero cape. Video consoles and games are also provided for the enjoyment of all the children on the pediatric unit. A scholarship grant has also been established at Miami Dade College Magic (Miami Animation Gaming International Complex.) The applicant must be a full time student in the video game program, have a 3,0 GPA, qualify for financial aid, and write an essay on anti-cheating in video games. The grant has been named the Stephen “Miggy” Chavez scholarship grant. In addition, we educate and bring awareness about the dangers of sun exposure, the importance of regular skin examinations, and the urgency of early detection. We do this by visiting local Boys Scout troops, summer camps, and after school sport programs. We donate and distribute educational materials and sunscreen dispensers and lotion. Through our seminars and skin cancer advocating efforts, we hope to make a difference in our community and fulfill Stephen’s desire of spreading the word about the dangers of Melanoma and all Skin Cancers.
www.miggysgift.org
The Mollie Biggane Melanoma Foundation
The Mollie Biggane Melanoma Foundation will increase awareness for melanoma
prevention, provide information and services on skin cancer detection, and
support melanoma patients through education of the latest treatments.
Mollie Biggane Melanoma Foundation, 168 Euston Road, Garden City, NY 11530,
516-877-2537, President: Jack Biggane, Director: Maggie Biggane
http://molliesfund.org
prevention, provide information and services on skin cancer detection, and
support melanoma patients through education of the latest treatments.
Mollie Biggane Melanoma Foundation, 168 Euston Road, Garden City, NY 11530,
516-877-2537, President: Jack Biggane, Director: Maggie Biggane
http://molliesfund.org
The Peggy Spiegler Melanoma Research Foundation
The creation of the Peggy Spiegler Melanoma Research Foundation (PSMRF) in 2010 is a tribute to a woman whose kindness, strength, and intrinsic humanity will live on. The foundation has two facets: research and education. The Foundation is partnering with the Abramson Cancer Center at the University of Pennsylvania Hospital, Philadelphia, PA and MD Anderson at Cooper Cancer Institute, Camden NJ and has established grants in Peggy's name at both institutions. These grants are being used to fund scientific research into the causes, prevention, treatment and cure of melanoma. In addition, seminars providing information about melanoma prevention and identification are being given to physicians, community members and education professionals.
www.psmrf.org
www.psmrf.org
Polka Dot Mama Melanoma Foundation
The Polka Dot Mama Melanoma Foundation funds research, raises awareness and educates the community about melanoma -- the deadliest form of skin cancer.
http://polkadotmama.org
http://polkadotmama.org
The Promise Foundation
The Promise Foundation's mission is to save lives through the promotion of skin cancer awareness and prevention. The Promise Foundation is a 501(c)3 organization. It was created in 2009 to honor a promise made to a friend, Susan DeZaio, who lost her battle with melanoma at the age of 45. In the memory of Susan and all those who have suffered from skin cancer, we dedicate our resources and funds to help fight skin cancer and save lives...and to fulfilling The Promise.
www.promisefoundation.org
Pull the Plug on Tanning Beds
Tanning beds -- no reason why you should use them, many reasons why you shouldn't. This group highlights the risks of tanning bed use, provides information about tanning bed ban legislation and promotes legislative advocacy, and plans and participates in various projects to educate others about the dangers of tanning beds.
https://www.facebook.com/BanTheBeds/
Save your Skin Foundation
Save Your Skin Foundation (SYSF) is a patient-led organization dedicated to the fight against non-melanoma skin cancers, melanoma, and ocular melanoma through education, advocacy, and awareness initiatives across Canada. SYSF provides a community of oncology patient and caregiver support throughout the entire continuum of care, from prevention and diagnosis to survivorship.
www.saveyourskin.ca
Skin of Steel
Skin of Steel’s mission is to provoke revolutionary personal, behavioral and institutional change in dealing with melanoma. Skin of Steel is partnering with Aim at Melanoma to launch the first national, collaborative melanoma tissue bank that will provide researchers with fresh-frozen samples of primary tumor tissue that preserves RNA and DNA. These samples will be collected at four medical research institutions across the U.S. with the aim of providing more effective personalized diagnostics, preemptive treatment, and targeted therapies.
http://skinofsteel.org
http://skinofsteel.org
SknVue
Our mission is to save lives like never before. Much more must be done to fight skin cancer at a global level. We are beginning this battle with our recently announced “Skn In The Game” worldwide campaign focused on the golf vertical, and with our new strategic partnership with the LPGA. Together, and with a mosaic of other golf tours and entities, we will promote awareness and educate people about the often hidden dangers of skin cancer with a global megaphone. All the while, providing exciting new tools and technology via our “SknVue Tracker App” that will be available to everyone this year.
https://sknvue.org
https://sknvue.org
SolSurvivors Melanoma Community
SolSurvivors Melanoma Community is a network of melanoma survivors, family, and friends who are passionate about raising awareness for melanoma, providing peer-to-peer support, and facilitating the involvement of patients and their loved ones in the design of melanoma research. We coordinate community events to educate patients and their families, advocate for sun safety, and are working closely with researchers at Oregon Health & Science University to wage a War on Melanoma.
http://www.wearesolsurvivors.org
http://www.wearesolsurvivors.org
Stage Free Melanoma
Stage FREE Melanoma (SFM) is an early stage non-profit organization, based in San Diego, California, with close ties to the Melanoma community and experience.
After being diagnosed with stage 3 melanoma in 2011 and continuing an ongoing fight with stage 4, Eric Martin felt compelled to address the lack of melanoma education and awareness in his hometown. Over the last 7 years Eric has developed deep ties in the melanoma community and plans on leveraging this network as President of SFM. Eric believes his story, and others, should be shared to benefit others and not only lived. Eric decided to pull from his network a group of people that share the same passion to deemphasize ‘Stages’, and instead focus on service to others and life.
Melanoma Research Contribution. Our primary mission is to raise funds to support clinical trials in Southern California conducting cutting edge research. There are many well funded programs that have amazing success with Melanoma patients. Sometimes patients are in need of the latest research and trials. SFM works with this niche Doctor population and strives to provide funding.
Melanoma Awareness. Increase awareness amongst youth and young adults of the pervasiveness and growth of Melanoma among their associated age group, while underscoring the importance of detection and treatment. By targeting high schools and universities with events, and appealing to them by utilizing social media as a form of communication, SFM hopes to reduce the skyrocketing growth of this form of cancer in Southern California.
Melanoma Detection. SFM does not wish to influence its community by instilling fear, but rather educate people on how preventable this form of cancer can be with effective detection techniques as part of their health care regiment. Our detection campaigns will not only promote annual screenings, but also provide guidance on ongoing self-detection techniques.
Serve the Southern California Community. We feel Southern California could greatly benefit from SFM, and is in need of additional services and support. We hope to fill this gap, and increase our coverage and service.
https://stagefreemelanoma.org
After being diagnosed with stage 3 melanoma in 2011 and continuing an ongoing fight with stage 4, Eric Martin felt compelled to address the lack of melanoma education and awareness in his hometown. Over the last 7 years Eric has developed deep ties in the melanoma community and plans on leveraging this network as President of SFM. Eric believes his story, and others, should be shared to benefit others and not only lived. Eric decided to pull from his network a group of people that share the same passion to deemphasize ‘Stages’, and instead focus on service to others and life.
Melanoma Research Contribution. Our primary mission is to raise funds to support clinical trials in Southern California conducting cutting edge research. There are many well funded programs that have amazing success with Melanoma patients. Sometimes patients are in need of the latest research and trials. SFM works with this niche Doctor population and strives to provide funding.
Melanoma Awareness. Increase awareness amongst youth and young adults of the pervasiveness and growth of Melanoma among their associated age group, while underscoring the importance of detection and treatment. By targeting high schools and universities with events, and appealing to them by utilizing social media as a form of communication, SFM hopes to reduce the skyrocketing growth of this form of cancer in Southern California.
Melanoma Detection. SFM does not wish to influence its community by instilling fear, but rather educate people on how preventable this form of cancer can be with effective detection techniques as part of their health care regiment. Our detection campaigns will not only promote annual screenings, but also provide guidance on ongoing self-detection techniques.
Serve the Southern California Community. We feel Southern California could greatly benefit from SFM, and is in need of additional services and support. We hope to fill this gap, and increase our coverage and service.
https://stagefreemelanoma.org
Summit Health Cares
Summit Health Cares is a non-profit organization committed to improving access to healthcare for the underserved in our communities, educating and inspiring future healthcare providers and promoting the courage, confidence and emotional well-being of individuals and their families facing cancer.
Summit has merged with the Enright Melanoma Foundation, and has taken over its Apply, Cover, Enjoy Sun Safety CertificationTM programs - free, online courses for ages 5 and over.
https://www.sh-cares.org
www.ApplyCoverEnjoy.org
Summit has merged with the Enright Melanoma Foundation, and has taken over its Apply, Cover, Enjoy Sun Safety CertificationTM programs - free, online courses for ages 5 and over.
https://www.sh-cares.org
www.ApplyCoverEnjoy.org
Tina's Place
Our Mission is to promote the well being of Melanoma patients by offering survivors and their families precious time away from their day-to-day in a peaceful lakefront setting and continue Tina's passion of melanoma education and awareness. Tina's Place is called to be a lighthouse, guiding individuals and families to reconnect with nature and celebrate life in a peaceful lakefront setting. We provide a free weeklong lakefront retreat in a 2-bedroom cottage in Michigan to support Melanoma Stage III & IV melanoma patients and their immediate family. We believe a cancer diagnosis does not just affect the patient, but the entire family.
At Tina's Place accommodations are free, while travel costs are the responsibility of those attending. Guests will enjoy a getaway to a lakefront cottage nestled in the trees on a quiet private lake in Michigan. The cottage offers two bedrooms and sleeps up to five guests. It is supplied with satellite TV and everything a family will need for their stay (excluding food and personal toiletries) and. Some fun family activities available include swimming, fishing, walks, paddleboat and campfires. The cottage offers privacy and relaxation.
www.tinasplace.com
The White Aisle Foundation
The White Aisle Foundation is a 501(c)(3) organization established to honor the life of Rebecca Garrison-Sokoloff, who died of melanoma in 2011 at the age of 34. The foundation educates about melanoma and its prevention, and advocates for public policies that help prevent skin cancer. In 2017, the foundation completed a five-year campaign to establish a melanoma research endowment in Rebecca's name at Beth Israel Deaconess Medical Center in Boston, MA. The endowment advances melanoma research and training by directly funding young researchers.
www.whiteaisle.org
www.whiteaisle.org
Individual Members
Casey Balkcom
Survivor and advocate
Keystone Hgts., FL
Fran Charlip
Advocate
Norwalk, CT
Laura Dimmitt
Advocate
Knoxville, TN
Meyer "Skip" Grinberg
Individual fundraiser
Pittsburgh, PA
Carolyn Heckman, Ph.d.
Cancer Institute of New Jersey
New Brunswick, NJ
Rebecca Heidgerd
Advocate
Milton, MA
Janet Heydenreich
Survivor and advocate
Aurora, CO
Nadia Jabri
Advocate
PA
Lauren Leager
Survivor and advocate
NC
Grace McElroy
Head of partnerships and distribution
Antidote
New York, NY
Melissa Moore/Melanoma on my Mind
Advocate
West Palm Beach, FL
Gayle Peterson, R.N.
Oncology nurse and advocate
MA
Carla Rake
Advocate
PA
Dr. Victoria Siegel, RN, CNS, EdD
Professor of Nursing
Molloy College
Rockville Center, NY