A melanoma diagnosis can create many kinds of stress. You may be shocked and confused initially. You may not know much about melanoma and what it means to have this disease. You may not know where to go for the best treatment, or what your treatment options are.
Both initially and as time goes on, the physical stress of fighting this disease is all too often accompanied by emotional and/or financial stress. You may suffer anxiety each time you face scans, worried about what the results will show. Your body image and self-confidence may suffer as the result of surgery or the effects of the drugs you are taking. There may be added stress on your relationships as you adjust to the uncertainties and demands melanoma places on both patients and their caregivers.
The costs of your medical care may be a concern, particularly if you are taking one of the new and expensive drugs or drug combinations. Your ability to work may be affected and you may worry about meeting your day to day costs of living.
Unfortunately, there is no magic bullet that can make all this go away, but there are places that can help. Here are some of them:
Check with your hospital or treatment center. Most have social workers or other assistants on staff who can help you find the assistance you need, and many have programs to help with patients' emotional and financial needs.
Good Days/Patients and Pros (formerly the Chronic Disease Fund)
Patients & Pros assists patients and the medical professionals that support them in finding financial help for medication costs. https://pnp.mygooddays.org
SolSurvivors 2nd Annual Melanoma Community Research Forum
SolSurvivors Oregon is hosting its 2nd Annual Melanoma Community Research Forum in partnership with the OHSU Department of Dermatology. Join us for a free community forum about how we're responding to the needs of our community with a patient-centered research project. Learn about exciting work that is underway to improve melanoma prevention and detection in Oregon. Plus, there will be plenty of opportunities to join the conversation and find out how you can get more involved! Parking and lunch are included!
The meeting will be held on January 21, 2017 at the Collaborative Life Sciences Building in Portland from 8:30 to 12:00 PM PST. A remote viewing party will be held in Bend Oregon. Register here for either event. More details are provided below.
Event time and location: Melanoma Community Research Forum Saturday, January 21, 2017 8:30 to 12:00 PM PST Collaborative Life Sciences Building 2730 S.W. Moody Avenue, Portland, OR
Tentative agenda: 8:30 to 9:00 a.m. Registration 9:00 to 9:30 a.m. Welcome and introductions; Overview of what we learned at last year’s forum 9:30 to 10:00 a.m. Plans for creating a patient-centered research proposal 10:00 to 10:15 a.m. Break 10:15 to 10:45 a.m. Melanoma outreach efforts in our community 10:45 to 11:30 a.m. Roundtable discussions 11:30 to 12:00 p.m. Information booths
Who should attend? - Melanoma patients and survivors - Family members and friends - Health care professionals - Community members with an interest in melanoma - Representatives from patient advocacy organizations - Representatives from professional organizations or other stakeholder groups
Not located in Portland? We are planning a remote viewing party for participants in Central Oregon. Register for this option to view a live video stream of the presentations The remote event will be held at the Knight Cancer Institute Regional Outreach office at 963 SW Simpson Ave, Suite 100, Bend, OR 97702. We will also live stream the presentations and post a recording on the SolSurvivors website for anyone who is unable to attend at either location.